Wednesday, May 04, 2011
The cloud of the future
Let's face it, girls...
I was driving to Chicago a couple of weeks ago when I passed this road sign. In this town the young folks have to watch out for people who are older and have more insurance.
Sunday, May 01, 2011
A quarter of a century
Yesterday was Gabriel's 25th birthday. As usual, we just celebrated as a family, going to Chili's for supper and then having cake and presents at home. Gabriel wanted a red velvet cake, which is sort of a family tradition dating back to Jesse's childhood. My mother, understanding how hectic my life was as a single mom to so many kids (not to mention the sheer number of birthdays we celebrated!), started offering to buy a cake for the kids' birthdays. Living close to the Red Oven Bakery in Arlington, she always bought the cakes there, and usually got their specialty: red velvet cake. But apparently red velvet cake is more of a Southern thing, and most bakeries here don't make it. I finally decided to make it myself, and it turned out pretty darn good, if I do say so myself!
Of course, birthdays are always a time for a bit of reflection. I have to say that this year Gabriel is doing pretty well. At least he's doing better this year than he has since his 20th birthday. It was 3 months after his 20th birthday that he had his first major psychotic break. Since then birthdays have come and gone, and he has slept through them, been hospitalized with blood sugar at 850 on one, has generally been spinning his wheels as life passed him by. But this year is different. I can look back over the last year and see that he has made progress since his last birthday. He goes to the Independence Center every day, where he is around other people, has work that he does, has a reason to get out of bed. He has better medical care up here, and adjustments to his medication have lessened the intrusiveness of the voices.
So, Happy Birthday, Gabriel! May you continue to build a meaningful life for yourself...
Friday, April 29, 2011
Artists at work
Finally winter's snowpack melted and we were able to venture forth from our house. Gaining access to state programs for the developmentally disabled has been extremely slow, and I have little hope that Marcus and Tevis will actually get any services. Apparently the only folks who actually get help are those whose parents have died and who have nowhere to go. So I set my mind to finding other community programs for the guys.
Sunday, January 23, 2011
Marking time

Saturday, January 15, 2011
Hijacking MLK Day

Monday, January 10, 2011
Scapegoat
Ah, so now it begins: the scapegoating of all people with schizophrenia. This evening I had been to visit Gabriel on the locked psych ward where he has been for the last week. When I came back home, I checked the updates on Facebook and read the following comment: "Simple soon as they sign up for SSI and claim a mental illness as the reason lock ' em up, restrain them, and medicate them thru shots or iv's. They wanna be state sucks let 'em live in a state hospital!"I was spitting mad!
Sunday, January 09, 2011
Connecting the dots
The astroturf movement, funded by Dick Armey et al, mobilized thousands to disrupt town hall meetings. After Rep. Giffords' town hall, a gun was found in the hall, dropped by an attendee.Words have consequences

When I heard about the shootings in Arizona today, I thought that surely the vast majority of reasonable people would wake up and recognize that the climate of vitriol and violent rhetoric that has engulfed this country in the last two years contributed to this tragedy. I was wrong. Many of my conservative friends assert that this was just the work of a disturbed mind and that the anti-government rhetoric, the talk of "second amendment remedies," the use of violent imagery in our political discourse had nothing to do with it.
Since my son has schizophrenia, which it appears the shooter could possibly have, this tragedy has made me think a lot about what could ever push him to commit a crime like this. Fortunately Gabriel's delusions and paranoia usually involve the Russian mob and the Mafia, not the government. But I got to thinking...what if our political extremists were calling Obama and the Democrats mobsters instead of socialists? What if Obama were pictured as a Mafia boss on all those protest signs, instead of Hitler, Stalin, or Lenin? What if the right wingnuts were scaring the public about mob hits, instead of re-education camps? And what if talk of using "second amendment remedies" or "hello Mr. Smith and Mr. Wesson" led him to go buy a gun? I have no doubt that if that rhetoric was bombarding him constantly, it could push him over the edge.
I whole heartedly agree with Sheriff Dupnik of Pima County AZ: " Let me just say one thing, because people tend to poo-poo this business about all the vitriole that we hear inflaming the American public by people who make a living off of doing that. That may be free speech. But it's not without consequences."
Wednesday, January 05, 2011
On the locked ward again

On the locked ward
Through pale green halls
They walk.
Perhaps they flee their demons
Or maybe they pursue them.
Pacing, pacing back and forth,
Pacing racing thoughts,
Moving to define
The boundary between themselves
And the world in which they move.
They watch.
With haunted eyes
They watch
A scene unseen by others.
Others can only see the reaction
On their faces:
Bewilderment, horror,
Amusement, interest.
The silent movie plays
For an audience of one.
They listen.
To compelling voices
They listen.
Voices that will not be still
Cajole and threaten,
Command and seduce,
Demanding to be heard
Through their own resounding echoes.
Tuesday, December 28, 2010
Define "normal"

A few years ago, I was considering moving Tevis out of the group home and back home with us. Over the years, his explosive, aggressive behavior had decreased, and I thought that it might work. When I had a meeting with the owner of the group home company and some other staff people, I was taken aback at their negative reaction to the idea. One of them said, "It's not normal for someone Tevis' age to move back home with his parents. People his age are leaving home, not moving back."
I've thought a lot about that statement since then, and especially since Tevis moved with us to Saint Louis. What exactly is "normal?" When someone has significant disabilities, why single out one facet of a normal life (moving out of the family home) and use that as the standard of what is normal? In doing so, many other aspects of a normal life are sacrificed. What is normal about being "cared for" (I use the term loosely) by an ever-changing staff, on three shifts, weekday and weekend, with a very high turnover rate? What is normal about having to worry if the next staff person will be fired and/or arrested for assaulting a resident? What is normal about spending most of your time shut in your room, watching TV, sleeping, and, well, let's say, entertaining yourself? What is normal about being unable to help yourself to a snack or go outside by yourself?
Recently I've been taking an online course on psychosocial rehabilitation. It's defined as providing the skills and supports to enable a person to live in their environment of choice. "The environment of choice" is the key. At Thanksgiving dinner, my son Jesse was asking everyone what they were thankful for. Without hesitation, Tevis said, "I'm thankful I don't live in the group home any more." Enough said.
Thursday, October 28, 2010
Coffee with my hero

Sunday, September 05, 2010
The American Dream

Every chapter

Wednesday, July 21, 2010
Treasure hunt

Friday, June 18, 2010
Back from Colorado


We did some hiking.































